Welcome to the Foundation for Sarcoidosis Research - Sarcoidosis Advanced Registry Cures (FSR-SARC) Patient Registry. As a person living with sarcoidosis, or connected to a person living with sarcodoisis, you know better than anyone that much more research is urgently needed to make meaningful advances in the treatment and search for a cure for sarcoidosis. Information is power, and the information only you can provide to physicians and researchers is critically needed to guide their efforts to find safer and more effective ways to help you and other sarcoidosis patients.
This FSR-SARC REGISTRY data will connect patients, physicians, scientists and funders seeking better treatments and a cure. By registering and agreeing to participate, your coded, unidentifiable and secure data about your treatments and disease effects can be added to those of others with this rare disease, and provide enough data to help guide the research community in setting research priorities and in developing new clinical trials.
This registry is a survey to gather information about the patients which will help research. Your name and contact information will never be shared.
Registering is easy and it’s free. Help us find a cure. Please, do it today!